If people without these challenges would read this book, they would have a better understanding of those with disabilities. She also highlights the numerous joys her family ha shared throughout the years. This book should bring you to both tears and laughter as the author was able to describe the frightening and sad experiences as well as the growth that comes from meeting extraordinary challenges. As someone who has been involved with the rare disease community for over 50 years, I applaud Eva for the way in which she has masterfully captured the reality of family life when a member must deal with a medically complicated life.
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